Helpline : +91 8892 555 000
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Patients and Families

Are you or someone you know affected by a rare disease, condition or disorder? Are you having difficulty diagnosing or dealing with a rare condition? Are the usual doctors unable to help you?

You may browse through this website for additional information and resources. We will be constantly enhancing the content and usefulness of this website for patients with rare diseases.

If you need further assistance, you may

  • call the rare disease HOTLINE: +91 8892 555 000 for assistance.
  • email for general advise and information.
  • If you have specific clinical issue, diagnosis, medical reports, images, and details, you may include them in your to

Registration Form:

Patients Registration Form
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Siblings Other then Patient
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  3. I confirm the above details are true to the best of by knowledge. I agree to all the rules and regulations of the society and society decision is final.


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