The lack of available drugs is one of the biggest challenges in rare disease treatment. If you work in the pharmaceutical industry and would like to join our network of experts, please register here.
You can support us through providing: -continuing medical education for doctors to raise awareness about the prevalence of rare diseases -additional patient care centers -patient meetings for specific disease support groups
ORDI is very encouraged by the enthusiasm and support of several national and international rare disease organizations for our mission. The Rare Genomics Institute (RGI) represents one of our early