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Delhi HC directs Centre to implement National Policy for Treatment of Rare Diseases

The battle which began in 2013 with Mohd. Ahmed case, has been taken forward by social jurist Advocate Ashok Agarwal that resulted in the formulation of a landmark policy for the country.

delhi-hc-story-fb_647_052617073427Filing a reply to a query raised by the Delhi High Court, central government standing counsel Shivlakshmi on Friday informed Justice Manmohan that the National Policy for Treatment of Rare Diseases has been formulated and draft policy has been approved by the Ministry of Health and Family Welfare.

The Judge while taking the policy document on record directed the central government to notify the policy and forthwith implement it. He also sought personal appearance of Lav Agarwal, Joint Secretary, Ministry of Health and Family Welfare, on the next date of hearing to make a presentation to the court on the policy document particularly with a view to make the implementation hassle free for patients.

The battle which began in 2013 with Mohd. Ahmed case, has been taken forward by social jurist Advocate Ashok Agarwal that resulted in the formulation of a landmark policy for the country.

“The policy formulated by the government is very comprehensive and addresses all major issues. However, the government should implement it in a patient-friendly manner,” said Agarwal.

Commenting on the policy, Justice Manmohan said, “Appreciable efforts have gone in the formulation of this policy. However, the treatment aspect of the patient is missing and the government needs to take into consideration ground realities keeping patient abilities in mind.”

Next date of hearing is August 4, 2017.

Source: http://indiatoday.intoday.in/story/delhi-high-court-national-policy-for-treatment-of-rare-diseases/1/963897.html

 

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