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Policy shame: sick, rare and ignored

If the Indian government is serious about its commitment to realise the rights of its citizens to universal and equitable health care, it cannot ignore rare diseases. The draft National Health Policy, 2015, makes no mention of them

Rare diseases are a diverse set of over 7,000 different conditions that afflict an estimated 1 in 20 Indians and 350 million people worldwide. Put simply, it means that every bus on the road with a full complement of passengers possibly has two people with a rare disease.

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