Organisation for Rare Diseases in india Launched
Through ORDI we will try to empower rare diseases patients and their families in India
To bridge the demand supply gap and work as a catalyst that can bring about a change in the manner in which rare diseases are diagnosed and treated a group of eminent health care leaders, NGO,s doctors and government bodies came together to lunch a first of its-kind Organisation for Rare Diseases India(ORDI).
“Through ORDI we will try to empower rare diseases patients and their families in India with access to national and international resource and help improve their quality of life. This would also mean the development and delivery of affordable diagnostic and treatments for rare diseases through innovative collaborations and partnership among multiple stakeholder'” Vijay Chandru, founder member ORDI said on the launch of the Organization here
The ORDI was formally launched recently here by the founding team members. The launch ceremony was attended by eminent scientist and medical advisor of ORDI, representatives of the rare diseases stakeholders and key opinion leaders in health care policy and administration in India.