Meeting people with rare diseases
Over two decades ago, Ravi and Nirmala from Bengaluru gave birth to their second child, a daughter who they named Dhanya.
While they were ecstatic to welcome a new member in their lives, what bothered them was Dhanya’s incessant wails which only grew with each passing day.
On the fifty-eighth day after her birth, doctors diagnosed the infant with osteogenesis imperfecta or brittle bone disease, a rare condition where the bones become extremely fragile.
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