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Media Invitation: Rare Diseases – Initiatives in Karnataka

Karnataka Vision Group for Biotechnology (VGBT) and the Organization of Rare Diseases (ORDI) cordially invite you to a media briefing on

Rare Diseases: Initiatives in Karnataka

On the occasion of World Rare Diseases Day (28th February), the two organizations will announce initiatives undertaken for rare disease patients in Karnataka

Agenda

Time Session Speaker
11:30-11:35am Opening Remarks Dr. Vijay ChandruMember ORDI, VGBT
11:35-11:50am Documentary on Rare Diseasesby Maya Chandra
11:50-12:00am Initiatives by Govt. of Karnataka on Rare Diseases Dr. Jagadish MitturKBITS, GoK
12:00-12:15pm Initiatives by ORDI Mr. Prasanna ShirolFounder Director, ORDI
12:15-12:30pm VGBT GuidelinesPolicy for Rare Diseases Dr. Vijay ChandruMember, VGBT
12:30-1:00pm Q&A with media
1:00pm Vote of Thanks Mr. Prasanna Shirol

 

Date:              Friday, February 27th, 2015

Time:            11.30 am (followed by lunch)

Venue:         The Chancery Pavilion, Residency Road, Bangalore

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