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Patients with rare, genetic disorders appeal for support

Patients with rare, genetic disorders appeal for support

04-03-2017

Lysosomal Storage Disorders (LSDs) are a group of over 50 rare, life-threatening, chronically debilitating diseases that occur due to the deficiency of specific enzymes in the body. With an aim of spreading awareness on rare, genetic disorders known as Lysosomal Storage Disorders and their impact on individual lives, Lysosomal Storage Disorders Support Society, India (LSDSS), […]

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Rare disease educational brochure

Rare disease educational brochure

01-03-2017

Click here to view the Rare disease educational brochure.

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Race For 7 - Rare Disease - Andhra Jyothy - Karnataka

Race For 7 – Rare Disease – Andhra Jyothy – Karnataka

28-02-2017

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Run For A Cause

Run For A Cause

28-02-2017

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Coverage Summary for ORDI press Conference

Coverage Summary for ORDI press Conference

17-02-2017

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Rare Disease Day: Race for 7 to be held on Feb 26

Rare Disease Day: Race for 7 to be held on Feb 26

17-02-2017

Bengaluru: The Organization for Rare Diseases India (ORDI), a non-profit organization committed to addressing the challenges of the rare disease community in the country, on Thursday announced the launch of 2017 Race for 7. Launched in 2016, Race for 7 is a 7000-metre run/walk to raise awareness for the 7000 documented rare diseases and the intent is […]

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Need to build global confidence & trust in clinical research in India

Need to build global confidence & trust in clinical research in India

15-02-2017

Given all the recent changes in the regulatory environment in the recent past and the regulators’ commitment to a creating a favourable clinical research environment in India, there is now a strong need to rebuild global confidence and trust in doing clinical research in India. This was the unanimous opinion of industry panelists in the […]

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Rare Genomics Institute and ORDI are recipients of Sanofi Genzyme’s PAL Award 2016 to Develop Rare Disease Online Learning Modules

Rare Genomics Institute and ORDI are recipients of Sanofi Genzyme’s PAL Award 2016 to Develop Rare Disease Online Learning Modules

31-01-2017

Los Angeles, CA and Herndon, VA January 31, 2017.  Rare Genomics Institute (RG) and the Organization for Rare Diseases India (ORDI) announced today that they are one of the recipients of Sanofi Genzyme’s 6th annual Patient Advocacy Leadership (PAL) Awards for 2016. RG and ORDI have won financial support for the development and dissemination of […]

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M.Sc. in Human Disease Genetics

M.Sc. in Human Disease Genetics

29-01-2017

CENTRE FOR HUMAN GENETICS Biotech Park, Electronics City Phase I, Bangalore 560 100  M.Sc. in Human Disease Genetics (2017-2019) (Degree awarded by University of Mysore) The Centre for Human Genetics, Bangalore, is admitting the third batch of students for its 2-year Master’s degree course in Human Disease Genetics.  This unique interdisciplinary programme at the interface […]

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Life-saving drug scarce, patients left in the lurch

Life-saving drug scarce, patients left in the lurch

28-11-2016

MUMBAI: When 20-year-old Gauri R was wheeled into the ICU of a south Mumbai hospital on Wednesday, it was an emergency that was in the making since July, when a life-saving drug, D-penicillamine became scarce across the country. Gauri suffers from Wilson’s disease, a genetic condition in which the body is unable to flush out […]

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