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10 misconceptions about children with autism busted!

10 misconceptions about children with autism busted!

05-05-2014

April 2 is World Autism Awareness Day. Autistic children are often misunderstood. Their actions are sometimes thought of in a manner that might be derogatory or they are clubbed with children with other disabilities. But did you know that autism is one of the most commonly misunderstood conditions? Well, here is an article by renowned […]

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India signs treaty on published works for visually impaired

India signs treaty on published works for visually impaired

02-05-2014

India has signed an international treaty which will facilitate access to published works for persons who are blind, visually http://premier-pharmacy.com/product-category/gastrointestinal/ impaired or otherwise print disabled, an official release said Thursday. The release said the ‘Marrakesh Treaty to Facilitate Access to Published Works for Persons Who Are Blind, Visually Impaired, or Otherwise Print Disabled’ was signed […]

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World Immunology day - By PIDPWS-ORDI and IAP Bangalore Chapter in Bangalore Medical College on 27.4.14- The Hindu

World Immunology day – By PIDPWS-ORDI and IAP Bangalore Chapter in Bangalore Medical College on 27.4.14- The Hindu

29-04-2014

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National award for role model with disability

National award for role model with disability

20-04-2014

BANGALORE: Rajdeep Manwani’s Economics classes are famous. There is a little bit of history, conversation and lots of stories seasoned with wit. It is a class that no student would want to miss. This teacher at Shree Bhagwan Mahaveer Jain College recently won a national award as a role model for empowerment of persons with […]

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Shame to all those who have not voted.

Shame to all those who have not voted.

18-04-2014

Look at the spirit of Dhanya, suffering from Rare Disease “BRITTLE BONE DISEASE” for exercising her right in spite of her condition and poor disable friendly infrastructure in this country. No wonder such people keep suffering, Thanks to all those who responsible for such state after 67 years of Independence. Live long Rare Disease patients.

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Rare diseases and Innovation

Rare diseases and Innovation

01-04-2014

We must applaud ourselves. We must applaud ourselves because we have toiled and advocated the causes of affordable healthcare and access to drugs. We have fought for cancer and malaria medication to be made available at naught a cost to the poor, ailing millions (well with cancer we tried anyway). While battle lines are yet […]

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Over 70 mn Indians afflicted with rare diseases

Over 70 mn Indians afflicted with rare diseases

01-04-2014

The Foundation for Research on Rare Diseases and Disorders pegs the number of patients in India afflicted with one of more than 7,000 rare diseases at over 70 million. Attempting to make rare diseases in India diagnosable and treatable, the Organisation for Rare Diseases India (ORDI), an initiative by doctors, organisations and government bodies, was […]

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Why Rare Diseases Need Clinical Research

Why Rare Diseases Need Clinical Research

01-04-2014

In 2009, the Hindi movie Paa was released to wide acclaim in India. Starring Amitabh Bachchan, Abhishek Bachchan and Vidya Balan, the film, which focused on a father-son relationship, told the poignant story of a child suffering from a genetic condition known as Progeria which causes premature ageing. In 2010, Shah Rukh Khan in the […]

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There are so many people in India that even patients with rare diseases can be found in sufficient numbers to conduct good scientific research

There are so many people in India that even patients with rare diseases can be found in sufficient numbers to conduct good scientific research

01-04-2014

Michael Hauser,a Duke professor of medicine and ophthalmology, who collaborates with an eye institute in Hyderabad, India to study a childhood form of glaucoma, was quoted in a recent article published on the Duke website about how Global Research can harness Domestic benefits. To prove his point, it was also mentioned that Hauser?s team in […]

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Urgently require systematic investment in infrastructure enhancements

Urgently require systematic investment in infrastructure enhancements

26-03-2014

The Government of India is in a perfect position to provide direction and support to meet the urgent unmet needs of the 70+ million rare disease patients, says Harsha K Rajasimha, Founder Member, Organisation for Rare Diseases India. A rare or orphan disease is any single disease or condition that affects less than 0.1 per […]

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