We here at Total Orphan Drugs, as part of this months focus on emerging markets for the orphan drug industry, have been speaking to Harsha K Rajasimha of the newly formed Organization for Rare Diseases India (ORDI). With a rare disease population estimated to be around 72,611,605 (more than the US and EU rare disease […]
Just because the Centre, State and AIIMS say they are short of funds Just because someone is short of funds, the State cannot allow him to die, the Delhi High Court said on Friday. The Court was moved by the plea of a rickshaw puller for free treatment of his seven-year-old son who suffers from […]
Nearly 3.7 million of the 70 million suffering from rare diseases are from Karnataka A Hindi movie in 2009 depicted the poignant story of a child suffering from a genetic condition, Progeria, that causes premature ageing. The subsequent year, another movie showed the life of a person living with an autism disorder that causes difficulty […]
In an effort to make rare diseases diagnosable and curable. In an effort to make rare diseases diagnosable and curable an initiative Organisation for Rare Diseases India(ORDI) was lanuched by a group of eminent health care leaders, NGO,S doctors and government bodies in Delhi. Addressing the media person Dr. Vijay Chandru founder member ORDI said, […]
Through ORDI we will try to empower rare diseases patients and their families in India To bridge the demand supply gap and work as a catalyst that can bring about a change in the manner in which rare diseases are diagnosed and treated a group of eminent health care leaders, NGO,s doctors and government bodies […]
Families of patients will also be provided Counselling, Guidance. Help-Line: 8892 555 000 It will provide Counselling, guidance and critical information
Kochi, Kerala, India.