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Rare diseases and Innovation

Rare diseases and Innovation

01-04-2014

We must applaud ourselves. We must applaud ourselves because we have toiled and advocated the causes of affordable healthcare and access to drugs. We have fought for cancer and malaria medication to be made available at naught a cost to the poor, ailing millions (well with cancer we tried anyway). While battle lines are yet […]

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Over 70 mn Indians afflicted with rare diseases

Over 70 mn Indians afflicted with rare diseases

01-04-2014

The Foundation for Research on Rare Diseases and Disorders pegs the number of patients in India afflicted with one of more than 7,000 rare diseases at over 70 million. Attempting to make rare diseases in India diagnosable and treatable, the Organisation for Rare Diseases India (ORDI), an initiative by doctors, organisations and government bodies, was […]

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Why Rare Diseases Need Clinical Research

Why Rare Diseases Need Clinical Research

01-04-2014

In 2009, the Hindi movie Paa was released to wide acclaim in India. Starring Amitabh Bachchan, Abhishek Bachchan and Vidya Balan, the film, which focused on a father-son relationship, told the poignant story of a child suffering from a genetic condition known as Progeria which causes premature ageing. In 2010, Shah Rukh Khan in the […]

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There are so many people in India that even patients with rare diseases can be found in sufficient numbers to conduct good scientific research

There are so many people in India that even patients with rare diseases can be found in sufficient numbers to conduct good scientific research

01-04-2014

Michael Hauser,a Duke professor of medicine and ophthalmology, who collaborates with an eye institute in Hyderabad, India to study a childhood form of glaucoma, was quoted in a recent article published on the Duke website about how Global Research can harness Domestic benefits. To prove his point, it was also mentioned that Hauser?s team in […]

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Endorsement of bill of entry should be restarted as loan licenses are very common in pharma industry

Endorsement of bill of entry should be restarted as loan licenses are very common in pharma industry

26-03-2014

– Daara Patel, Secretary General, Indian Drug Manufactures Association The pharma industry faces a huge problem due to the inverted duty structure, i.e. higher duty on inputs at 12 per cent and lower duty on final products (six per cent) and the resulting accumulation of ever mounting cenvat credit. Hence, we request that parity be […]

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Can't let a poor boy die before our eyes, says High Court

Can’t let a poor boy die before our eyes, says High Court

03-03-2014

Just because the Centre, State and AIIMS say they are short of funds Just because someone is short of funds, the State cannot allow him to die, the Delhi High Court said on Friday. The Court was moved by the plea of a rickshaw puller for free treatment of his seven-year-old son who suffers from […]

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One in 20 Indians hit by rare diseases

One in 20 Indians hit by rare diseases

28-02-2014

Nearly 3.7 million of the 70 million suffering from rare diseases are from Karnataka A Hindi movie in 2009 depicted the poignant story of a child suffering from a genetic condition, Progeria, that causes premature ageing. The subsequent year, another movie showed the life of a person living with an autism disorder that causes difficulty […]

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