Helpline : +91 8892 555 000
Email : contactus@ordindia.org

Other RD News

Treat rare disease patients for free

Treat rare disease patients for free

06-09-2015

Read More

Amicus bags PhIII rare disease drug in $847M Scioderm buyout

Amicus bags PhIII rare disease drug in $847M Scioderm buyout

03-09-2015

Amicus Therapeutics has stepped in to snap up the late-stage rare disease biotech Scioderm, beefing up its orphan drug pipeline in exchange for $229 million in stock and cash along with a promise of up to $618 million more for meeting a slate of milestones. The buyout leaves Amicus ($FOLD) with its lead drug Galafold […]

Read More

बच्चों को बचाएं दुर्लभ बीमारियों से

बच्चों को बचाएं दुर्लभ बीमारियों से

19-03-2015

?????? ????????? ?? ????? ????? ???? ?? ?? ???? ?? ????? ???? ???? ?????????? ?? ????? ?? ?? ?????? ?? ???? ??? ???? ?? ??? ?? ???? ???? ?? ??????? ??????? ???? ??? ????? ?? ????? ? ?? ??? ??, ?? ?????? ????????? ???? ??? ??, ??? ???? ??? ???, ???? ?? ????-?? ??? ??? […]

Read More

Often neglected, rare diseases now have a collective voice

Often neglected, rare diseases now have a collective voice

19-03-2015

Read More

Indian needs extra health budget for rare diseases

Indian needs extra health budget for rare diseases

28-02-2015

New Delhi, 27th February, 2015: Rare Diseases Day was observed on 27th February to raise awareness about rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. Addressing a press meet , Dr A Marthanda Pillai and Dr K K Aggarwal, National President and Honorary Secretary General […]

Read More

Delhi HC asks AIIMS to provide free treatment to genetic disorder patient

Delhi HC asks AIIMS to provide free treatment to genetic disorder patient

28-02-2015

New Delhi: The Delhi High Court Friday directed AIIMS to provide free treatment to a two-year-old boy, suffering from Gaucher’s disease, a genetic disorder. Justice Rajiv Shakdher also issued notice to union health ministry, Delhi government and AIIMS and sought their response by May 5. It also asked the ministry to consider increasing the health […]

Read More

They've added muscle to a cause

They’ve added muscle to a cause

17-02-2015

Read More

Multiple-Sclerosis Fact Sheet

Multiple-Sclerosis Fact Sheet

28-05-2014

Multiple sclerosis (MS) is an autoimmune disorder that affects the nervous system. When someone has MS, that person’s own immune system attacks its own nervous system, which causes periods of vision loss, numbness, pain and an array of other symptoms. Your nervous system consists of specialized cells called neurons, which transmit signals to and from […]

Read More

Rare liver disease Indian Childhood Cirrhosis is back

Rare liver disease Indian Childhood Cirrhosis is back

19-05-2014

A rare liver disease, which was considered to have been wiped out from the country, is making a comeback. Indian Childhood Cirrhosis (ICC), a chronic liver disease common to the Indian subcontinent, can prove fatal for children between one and three years of age. The disease, which is characterised by cirrhosis of the liver due […]

Read More

Dr I C Verma Director, Centre of Medical Genetics Sir Ganga Ram Hospital, New Delhi

Making people realize that genetic problems are treatable is a big challenge – Dr.I.C.Verma

19-05-2014

Dr I C Verma is currently the head of genetic medicine department at Sri Ganga Ram Hospital, New Delhi. He was earlier professor of paediatrics and genetics at the All India Institute of Medical Sciences (AIIMS), New Delhi. He received genetics training in UK, US and Switzerland. He is a Fellow of the Royal College […]

Read More

Highslide for Wordpress Plugin