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Other RD News

They've added muscle to a cause

They’ve added muscle to a cause

17-02-2015

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Multiple-Sclerosis Fact Sheet

Multiple-Sclerosis Fact Sheet

28-05-2014

Multiple sclerosis (MS) is an autoimmune disorder that affects the nervous system. When someone has MS, that person’s own immune system attacks its own nervous system, which causes periods of vision loss, numbness, pain and an array of other symptoms. Your nervous system consists of specialized cells called neurons, which transmit signals to and from […]

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Rare liver disease Indian Childhood Cirrhosis is back

Rare liver disease Indian Childhood Cirrhosis is back

19-05-2014

A rare liver disease, which was considered to have been wiped out from the country, is making a comeback. Indian Childhood Cirrhosis (ICC), a chronic liver disease common to the Indian subcontinent, can prove fatal for children between one and three years of age. The disease, which is characterised by cirrhosis of the liver due […]

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Dr I C Verma Director, Centre of Medical Genetics Sir Ganga Ram Hospital, New Delhi

Making people realize that genetic problems are treatable is a big challenge – Dr.I.C.Verma

19-05-2014

Dr I C Verma is currently the head of genetic medicine department at Sri Ganga Ram Hospital, New Delhi. He was earlier professor of paediatrics and genetics at the All India Institute of Medical Sciences (AIIMS), New Delhi. He received genetics training in UK, US and Switzerland. He is a Fellow of the Royal College […]

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Expatriate mother in Muscat donates liver to save her son

Expatriate mother in Muscat donates liver to save her son

19-05-2014

Muscat: Motherhood is all about caring. It is said that motherhood is where all the love begins and ends. “I would do just about anything my kid wants. For him, there’s nothing which I can’t do,” an expatriate mother in Muscat who is readying herself to donate her organ to save the life of her […]

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Early intervention centres in Kerala soon

Early intervention centres in Kerala soon

07-05-2014

To screen developmental delays and disabilities in children. The departments of Health and Social Justice are launching a major joint initiative to tackle childhood disabilities through the early identification of developmental delays and disabilities and early interventions so that these conditions do not become permanent or debilitating. District Early Intervention Centres (DEICs) will soon be […]

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Patients Sought For Biomarin Clinical Trial

Patients Sought For Biomarin Clinical Trial

06-05-2014

BioMarin is currently seeking patients for a Phase 3 clinical trial in Late Onset Pompe Disease. This phase 3 study incorporates a switchover design in which all patients switch directly from Myozyme? or Lumizyme?1 to the experimental drug BMN 701 without missing doses, to determine if patients currently on enzyme replacement therapy with Myozyme? or […]

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10 misconceptions about children with autism busted!

10 misconceptions about children with autism busted!

05-05-2014

April 2 is World Autism Awareness Day. Autistic children are often misunderstood. Their actions are sometimes thought of in a manner that might be derogatory or they are clubbed with children with other disabilities. But did you know that autism is one of the most commonly misunderstood conditions? Well, here is an article by renowned […]

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India signs treaty on published works for visually impaired

India signs treaty on published works for visually impaired

02-05-2014

India has signed an international treaty which will facilitate access to published works for persons who are blind, visually impaired or otherwise print disabled, an official release said Thursday. The release said the ‘Marrakesh Treaty to Facilitate Access to Published Works for Persons Who Are Blind, Visually Impaired, or Otherwise Print Disabled’ was signed at […]

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Shame to all those who have not voted.

Shame to all those who have not voted.

18-04-2014

Look at the spirit of Dhanya, suffering from Rare Disease “BRITTLE BONE DISEASE” for exercising her right in spite of her condition and poor disable friendly infrastructure in this country. No wonder such people keep suffering, Thanks to all those who responsible for such state after 67 years of Independence. Live long Rare Disease patients.

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