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Health Ministru Works On Rare Disease Policy

Health Ministru Works On Rare Disease Policy

15-10-2016

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For genome services, India must be put on the map

For genome services, India must be put on the map

27-09-2016

Prajwal Hulluraiah is engrossed in a game on his mother’s mobile phone and wouldn’t look up to talk to you. But that’s where his similarity with any other 11-year-old ends. Twice a month, Prajwal checks into the Indira Gandhi Institute of Child Health (IGICH) in Bangalore for a six-hour procedure to replace the enzymes in […]

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Court Asks Institute to Help Children Suffering from Rare Genetic Disorder

Court Asks Institute to Help Children Suffering from Rare Genetic Disorder

30-08-2016

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IGICH to treat patients with rare diseases for free

IGICH to treat patients with rare diseases for free

12-08-2016

According to sources, the cost of treatment would run into thirty-five crore rupees annually, which will be footed by the State Government. Bengaluru: Parents and guardians of patients suffering from rare diseases have always found it difficult to arrange funds for the treatment of their children with rare diseases. However, with the Karnataka high court […]

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SmartPeople: Mission possible

SmartPeople: Mission possible

25-07-2016

Developing medicines for rare diseases requires an entirely different mindset, says John Crowley, chairman and CEO of rare disease company Amicus Therapeutics. “Developing drugs in rare diseases is very different from more prevalent disorders – the clinical studies are very small, you have different endpoints and biomarkers, different regulatory paradigms and different types of sales […]

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Sahyogi - Care Associate (Care Giver) Training

Sahyogi – Care Associate (Care Giver) Training

21-07-2016

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Brain-Dead Boy Gives Life To Woman With Rare Heart Disease

Brain-Dead Boy Gives Life To Woman With Rare Heart Disease

20-07-2016

A teenager who was declared brain-dead following a road accident gave life to a 27-year-old woman suffering from a rare disease as his heart was successfully transplanted in her after being transported from Thiruvananthapuram by a Naval Air Ambulance here on Tuesday. A team of doctors at the Lisie http://premier-pharmacy.com/product-category/migraine/ Hospital here claimed that they […]

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Rare Genetic Diseases Diagnosed In A.P. Hospital

Rare Genetic Diseases Diagnosed In A.P. Hospital

15-07-2016

Three persons, including a 15-year-old girl, have been diagnosed at the Government General Hospital here with rare genetic disorders arising out of consanguineous marriages. N.V. Sundarachary, Head of the Department, Neurology, http://premier-pharmacy.com/product-category/weight-loss/ said the two diseases — Wilson’s disease and Leukodystrophy — could be categorised under rare diseases with an incidence of 1-4 in one […]

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Screening For Rare Genetic Disorders At a Point-Of-Click

Screening For Rare Genetic Disorders At a Point-Of-Click

11-07-2016

Fast and accurate diagnosis of disease-causing mitochondrial genetic mutations is now possible thanks to automation of the entire process of data analysis and interpretation by a team of researchers at the Delhi-based CSIR Institute of Genomics and Integrative Biology. The comprehensive pipeline developed by a team led by Dr. Sridhr http://pharmacy-no-rx.net/propecia_generic.html Sivasubbu and Dr. Vinod […]

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Scholar Maps Rare Genetic Disorders Across India

Scholar Maps Rare Genetic Disorders Across India

08-07-2016

Blood tears, countless benign tumours in vital organs and accelerated ageing were among the 30 rare genetic disorders that a young doctor-in-the-making has mapped across India as part of her research as a Fulbright scholar. Aditi Kantipuly, a student of medicine at the Johns Hopkins University, has spent the past seven weeks visiting several States […]

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