Helpline : +91 8892 555 000
Email : contactus@ordindia.org

Other RD News

Media Coverage on the National Policy for Treatment of Rare Diseases

Media Coverage on the National Policy for Treatment of Rare Diseases

31-05-2017

Below are the prominent websites informing us the National Policy for Treatment of Rare Diseases. The stories have highlighted the fact that the policy has been http://healthsavy.com/product/cipro/ approved by the government. They have also thrown light on the need for making the policy more patient-friendly. http://indiatoday.intoday.in/story/delhi-high-court-national-policy-for-treatment-of-rare-diseases/1/963897.html http://www.sify.com/news/delhi-hc-directs-centre-to-implement-rare-diseases-policy-news-national-rf0tb9hghgjjf.html http://www.outlookindia.com/newsscroll/delhi-hc-directs-centre-to-implement-rare-diseases-policy/1060681 http://www.aninews.in/newsdetail-Mg/MzE2Mzkw/delhi-hc-directs-centre-to-implement-rare-diseases-policy.html http://www.business-standard.com/article/news-ani/delhi-hc-directs-centre-to-implement-rare-diseases-policy-117052601281_1.html

Read More

Delhi HC directs Centre to implement rare diseases policy

Delhi HC directs Centre to implement rare diseases policy

27-05-2017

May 26 (ANI): The Delhi High Court on Friday directed the Centre to forthwith implement national policy for treatment of rare diseases. The Central Government standing counsel today informed the High Court that the national policy on the treatment of rare diseases has been formulated and draft policy has been approved by the Ministry of […]

Read More

Delhi HC directs Centre to implement National Policy for Treatment of Rare Diseases

Delhi HC directs Centre to implement National Policy for Treatment of Rare Diseases

27-05-2017

The battle which began in 2013 with Mohd. Ahmed case, has been taken forward by social jurist Advocate Ashok Agarwal that resulted in the formulation of a landmark policy for the country. Filing a reply to a query raised by the Delhi High Court, central government standing counsel Shivlakshmi on Friday informed Justice Manmohan that […]

Read More

Government Submits Rare Disease Policy to Delhi HC, Recommends Rs 100 Crore for Genetic Diseases

Government Submits Rare Disease Policy to Delhi HC, Recommends Rs 100 Crore for Genetic Diseases

27-05-2017

n November 2016, the Delhi high court had ordered the government to finalise a policy on rare disease as patients repeatedly petitioned the court asking that the expensive drugs required for treatment be provided for free. New Delhi: The government of India has finalised and approved the National Policy for Treatment of Rare Diseases. With an affidavit […]

Read More

Karnataka Doctor Discovers Rare Disorder

Karnataka Doctor Discovers Rare Disorder

24-05-2017

In a proud moment for the Indian research community, a rare congenital condition is set to be named after a Karnataka doctor. It’ll be called Nallegowda Syndrome. Dr Mallikarjun Nallegowda, from Holalkere in Chitradurga district, studied in Bangalore Medical College in the 1990s and is currently working in Colorado, US. He is said to be […]

Read More

Need to build global confidence & trust in clinical research in India

Need to build global confidence & trust in clinical research in India

15-02-2017

Given all the recent changes in the regulatory environment in the recent past and the regulators’ commitment to a creating a favourable clinical research environment in India, there is now a strong need to rebuild global confidence and trust in doing clinical research in India. This was the unanimous opinion of industry panelists in the […]

Read More

M.Sc. in Human Disease Genetics

M.Sc. in Human Disease Genetics

29-01-2017

CENTRE FOR HUMAN GENETICS Biotech Park, Electronics City Phase I, Bangalore 560 100  M.Sc. in Human Disease Genetics (2017-2019) (Degree awarded by University of Mysore) The Centre for Human Genetics, Bangalore, is admitting the third batch of students for its 2-year Master’s degree course in Human Disease Genetics.  This unique interdisciplinary programme at the interface […]

Read More

Life-saving drug scarce, patients left in the lurch

Life-saving drug scarce, patients left in the lurch

28-11-2016

MUMBAI: When 20-year-old Gauri R was wheeled into the ICU of a south Mumbai hospital on Wednesday, it was an emergency that was in the making since July, when a life-saving drug, D-penicillamine became scarce across the country. Gauri suffers from Wilson’s disease, a genetic condition in which the body is unable to flush out […]

Read More

Hunter Syndrome - A rare disease patient Shaurya's Story

Hunter Syndrome – A rare disease patient Shaurya’s Story

28-11-2016

Read More

Stanford uses CRISPR to correct sickle cell, human trials planned

Stanford uses CRISPR to correct sickle cell, human trials planned

13-11-2016

CHICAGO –  Scientists at Stanford University School of Medicine have used the CRISPR gene editing tool to repair the gene that causes sickle cell disease in stem cells from diseased patients, paving the way for a potential cure for the disease, which affects up to 5 million people globally. “What we’ve finally shown is that […]

Read More

Highslide for Wordpress Plugin