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Other RD News

Rare Genomics Institute Launches 2017-2018 BeHEARD (Helping Empower and Accelerate Research Discoveries) Rare Disease Challenge

Rare Genomics Institute Launches 2017-2018 BeHEARD (Helping Empower and Accelerate Research Discoveries) Rare Disease Challenge

10-11-2017

The Rare Genomics (RG) Institute is delighted to announce the launch of the 2018 BeHEARD (Helping Empower and Accelerate Research Discoveries) science challenge (Deadline November 27, 2017), a global competition that offers rare disease researchers, who traditionally have difficulty attracting funding, grants of cash and the latest life science innovations and technologies. This unique crowdsourced […]

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FSSAI Diet for Life Seminar on 28 October

FSSAI Diet for Life Seminar on 28 October

05-11-2017

Patient support group Mr.Vikas Bhatia of MERD and Mr.Samir Sethi of Indian Rett Syndrome foundation participated in the Awareness program on IEM (in born Error of Metabolism) in New Delhi (North Zone) on 28th OCt 2017 at India Habitat Center, Diet for life is a project started by Food Safety Standard Authority of India (FSSAI)

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Boy with Rare Disorder Overcomes Challenges

Boy with Rare Disorder Overcomes Challenges

04-11-2017

Click here to watch the video of a boy with rare disorder who overcomes the challenges.

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LSDSS Demands Corpus Fund for Diagnosis and Treatment of Rare Disease

LSDSS Demands Corpus Fund for Diagnosis and Treatment of Rare Disease

04-11-2017

Lysosomal Storage Disorders Support Society (LSDSS) has asked the state government to create corpus fund from the annual state budget for better diagnosis and treatment of rare diseases. LSDSS president Manjit Singh on the International Gaucher Day organised an awareness programme at JK Lon Hospital in Jaipur on Monday. Parents with their children suffering from […]

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Survey Questionnaire to Set Research Priorities for Liver GSD

Survey Questionnaire to Set Research Priorities for Liver GSD

12-10-2017

  On behalf of the Priority Setting Partnership Steering Group, we would like to share a survey questionnaire to set research priorities for liver GSD. Responding will take you max 5 minutes. We ask only GSD patient (caregivers) and health care providers to answer. https://www.surveymonkey.com/r/IGSDPSP-English  This initiative was presented during the IGSD2017 conference in Groningen. The goal is […]

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Rare Diseases Centre hit by fund crunch

Rare Diseases Centre hit by fund crunch

04-09-2017

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Newsletter from Centre for Eye Genetics and Research

Newsletter from Centre for Eye Genetics and Research

31-07-2017

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Charitable Access Program

Charitable Access Program

24-07-2017

Charitable Access Program application link for 2017 is now activated. The link for the actual application is https://app.wizehive.com/apps/login/shire2017 Click here to download the application instructions. The application deadline is September 3, 2017.

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Innovations in medicine needed to cure rare diseases: Doctors

Innovations in medicine needed to cure rare diseases: Doctors

30-06-2017

Calling for better health research in India, health experts, including those from the All India of Institute of Medical Sciences (AIIMS), on Wednesday said that innovations in medicine alone can help cure rare diseases. Considering India’s population, doctors said that the number of patients suffering from rare diseases was quite significant now. The diseases are […]

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Putting Wheelchair Users Behind the Wheel

Putting Wheelchair Users Behind the Wheel

29-06-2017

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