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ORDI News

Vision group working on rare disease policy

Vision group working on rare disease policy

11-02-2015

ORDI founder Members -Dr Vijay Chandru- Chairman & CEO Strand Life Sciences and Prasanna Shirol- Founder Member -ORDI in Bangalore Bio Conference 2015 along with other Speakers Mr Sandeep Sahaney- Head Intercontinental- Genzyme- Sanofi, Dr Navaneetham- Founder -Foundation for Research on Rare Disease and Disorder, Dr Shantaram Baliga- President National Neonatology Forum -Karnataka Chapter, Mr […]

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CENTOGENE to collaborate with Organization of Rare Diseases of India

CENTOGENE to collaborate with Organization of Rare Diseases of India

15-12-2014

CENTOGENE is pleased to announce its sponsorship of the Organization of Rare Diseases of India (ORDI). ORDI is a not-for-profit organization founded and advised by key opinion leaders from medicine, patients, industry, government and non-governmental organizations to address the unmet needs in the management of rare diseases in India. There are an estimated 70 million […]

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World Immunology day - By PIDPWS-ORDI and IAP Bangalore Chapter in Bangalore Medical College on 27.4.14- The Hindu

World Immunology day – By PIDPWS-ORDI and IAP Bangalore Chapter in Bangalore Medical College on 27.4.14- The Hindu

29-04-2014

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Urgently require systematic investment in infrastructure enhancements

Urgently require systematic investment in infrastructure enhancements

26-03-2014

The Government of India is in a perfect position to provide direction and support to meet the urgent unmet needs of the 70+ million rare disease patients, says Harsha K Rajasimha, Founder Member, Organisation for Rare Diseases India. A rare or orphan disease is any single disease or condition that affects less than 0.1 per […]

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Opening Up the Indian Rare Disease Market: An interview with ORD India

Opening Up the Indian Rare Disease Market: An interview with ORD India

20-03-2014

We here at Total Orphan Drugs, as part of this months focus on emerging markets for the orphan drug industry, have been speaking to Harsha K Rajasimha of the newly formed Organization for Rare Diseases India (ORDI). With a rare disease population estimated to be around 72,611,605 (more than the US and EU rare disease […]

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Initiative to make rare diseases diagnosable

Initiative to make rare diseases diagnosable

26-02-2014

In an effort to make rare diseases diagnosable and curable. In an effort to make rare diseases diagnosable and curable an initiative Organisation for Rare Diseases India(ORDI) was lanuched by a group of eminent health care leaders, NGO,S doctors and government bodies in Delhi. Addressing the media person Dr. Vijay Chandru founder member ORDI said, […]

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Organisation for Rare Diseases in india Launched

Organisation for Rare Diseases in india Launched

24-02-2014

Through ORDI we will try to empower rare diseases patients and their families in India To bridge the demand supply gap and work as a catalyst that can bring about a change in the manner in which rare diseases are diagnosed and treated a group of eminent health care leaders, NGO,s doctors and government bodies […]

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Help for rare diseases a call away

Help for rare diseases a call away

15-10-2013

Families of patients will also be provided Counselling, Guidance. Help-Line: 8892 555 000 It will provide Counselling, guidance and critical information

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