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ORDI News

Press Release: World Rare Diseases Day

Press Release: World Rare Diseases Day

27-02-2015

World Rare Diseases Day: VGBT and ORDI partner in Karnataka Bangalore: Around seventy million patients in India (three to four million in Karnataka) are affected with one of more than seven thousand rare diseases. The number of patients with known and novel rare diseases is increasing every year. Due to the inadequate infrastructure or the […]

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26 Feb 2015 - Press coverage

26 Feb 2015 – Press coverage

27-02-2015

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Most patients get no treatments - Prasanna Shirol

Most patients get no treatments – Prasanna Shirol

26-02-2015

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Vision group working on rare disease policy - TOI report

Vision group working on rare disease policy – TOI report

17-02-2015

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Karnataka Vision Group ready with draft of Rare Diseases and Orphan Drugs Development Act

Karnataka Vision Group ready with draft of Rare Diseases and Orphan Drugs Development Act

11-02-2015

– Nandita Vijay, Bengaluru The Karnataka Vision Group on Biotechnology has now put in place the draft of the Rare Diseases and Orphan Drugs Development Act. Efforts are on to enforce the Act by the year end. “There is need for a dedicated Act considering the burden of the rare diseases impacting Indian population. There […]

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Vision group working on rare disease policy

Vision group working on rare disease policy

11-02-2015

ORDI founder Members -Dr Vijay Chandru- Chairman & CEO Strand Life Sciences and Prasanna Shirol- Founder Member -ORDI in Bangalore Bio Conference 2015 along with other Speakers Mr Sandeep Sahaney- Head Intercontinental- Genzyme- Sanofi, Dr Navaneetham- http://premier-pharmacy.com/product-category/erectile-dysfunction/ Founder -Foundation for Research on Rare Disease and Disorder, Dr Shantaram Baliga- President National Neonatology Forum -Karnataka Chapter, […]

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CENTOGENE to collaborate with Organization of Rare Diseases of India

CENTOGENE to collaborate with Organization of Rare Diseases of India

15-12-2014

CENTOGENE is pleased to announce its sponsorship of the Organization of Rare Diseases of India (ORDI). ORDI is a not-for-profit organization founded and advised by key opinion leaders from medicine, patients, industry, government and non-governmental organizations to address the unmet needs in the management of rare diseases in India. There are an estimated 70 million […]

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World Immunology day - By PIDPWS-ORDI and IAP Bangalore Chapter in Bangalore Medical College on 27.4.14- The Hindu

World Immunology day – By PIDPWS-ORDI and IAP Bangalore Chapter in Bangalore Medical College on 27.4.14- The Hindu

29-04-2014

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Urgently require systematic investment in infrastructure enhancements

Urgently require systematic investment in infrastructure enhancements

26-03-2014

The Government of India is in a perfect position to provide direction and support to meet the urgent unmet needs of the 70+ million rare disease patients, says Harsha K Rajasimha, Founder Member, Organisation for Rare Diseases India. A rare or orphan disease is any single disease or condition that affects less than 0.1 per […]

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Opening Up the Indian Rare Disease Market: An interview with ORD India

Opening Up the Indian Rare Disease Market: An interview with ORD India

20-03-2014

We here at Total Orphan Drugs, as part of this months focus on emerging markets for the orphan drug industry, have been speaking to Harsha K Rajasimha of the newly formed Organization for Rare Diseases India (ORDI). With a rare disease population estimated to be around 72,611,605 (more than the US and EU rare disease […]

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