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ORDI News

ಸುವರ್ಣ ಟೈಮ್ಸ್ ಆಫ್ ಕರ್ನಾಟಕ

ಸುವರ್ಣ ಟೈಮ್ಸ್ ಆಫ್ ಕರ್ನಾಟಕ

03-03-2015

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ಸಂಯುಕ್ತ ಕರ್ನಾಟಕ

ಸಂಯುಕ್ತ ಕರ್ನಾಟಕ

03-03-2015

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Eeandu

Eeandu

03-03-2015

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Andhra Jyothi

Andhra Jyothi

03-03-2015

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Bangalore Mirror

Bangalore Mirror

02-03-2015

With a sizeable number of the 13,000-plus infant deaths per year in Karnataka being attributed to rare diseases, patient-support groups are demanding the implementation of the proposed Orphan Drugs Act on the lines of the US model. The Organisation for Rare Diseases India (ORDI), a non-profit organisation, has been advocating the need for the act […]

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Pharma Biz

Pharma Biz

28-02-2015

The Indian Society of Clinical Research (ISCR) and the Organisation for Rare Diseases India (ORDI) are alarmed about the lack of treatment option for 70 million rare disease patients in the country and are keen to intensify clinical research. This would not just drive drug development but provide access to expensive drugs that under research […]

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Clinical trials imperative to bring relief to patients with rare diseases

Clinical trials imperative to bring relief to patients with rare diseases

28-02-2015

– By Neelam M Kachhap The rare diseases causes a range of physical, cognitive and developmental disabilities and occurs in about one in 10,000 live births Recently Rare Disease Day was observed by the Indian Society for Clinical Research (ISCR). The event held at Bengaluru aimed to raise awareness by educating people through media. Among […]

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The Hindu

The Hindu

27-02-2015

With the country’s healthcare judging its patients by statistics, the Bengaluru-based Organisation of Rare Diseases India (ORDI) is drafting a state ‘orphan drug policy’ to aid those afflicted with ‘rare illnesses’. India doesn’t have an orphan drug policy – named so, due to the research neglect into these drugs – which leaves thousands of sufferers […]

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Financial Chronicle – Express Healthcare

Financial Chronicle – Express Healthcare

27-02-2015

The rare diseases causes a range of physical, cognitive and developmental disabilities and occurs in about one in 10,000 live births Recently Rare Disease Day was observed by the Indian Society for Clinical Research (ISCR). The event held at Bengaluru aimed to raise awareness by educating people through media. Among those attending were Prasanna Shirol, […]

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Media Invitation: Rare Diseases - Initiatives in Karnataka

Media Invitation: Rare Diseases – Initiatives in Karnataka

27-02-2015

Karnataka Vision Group for Biotechnology (VGBT) and the Organization of Rare Diseases (ORDI) cordially invite you to a media briefing on Rare Diseases: Initiatives in Karnataka On the occasion of World Rare Diseases Day (28th February), the two organizations will announce initiatives undertaken for rare disease patients in Karnataka Agenda Time Session Speaker 11:30-11:35am Opening […]

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