Sameena Ishaq from California and Mr Prasanna Kumar from ORDI interacts with doctors in manipal hospital on 9 july 2015. Sameena shared her story in diagnosing and managing her son Adnan, diagnosed with PACS1 syndrome and Mr prasanna kumar shirol shared his experience in India and ORDI initiatives. On this occasion Dr Jagadish Chinnappa, Dr […]
With a sizeable number of the 13,000-plus infant deaths per year in Karnataka being attributed to rare diseases, patient-support groups are demanding the implementation of the proposed Orphan Drugs Act on the lines of the US model. The Organisation for Rare Diseases India (ORDI), a non-profit organisation, has been advocating the need for the act […]
Kochi, Kerala, India.