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ORDI News

Patient Doctors Interaction

Patient Doctors Interaction

27-07-2015

Sameena Ishaq from California and Mr Prasanna Kumar from ORDI interacts with doctors in manipal hospital on 9 july 2015. Sameena shared her story in diagnosing and managing her son Adnan, diagnosed with PACS1 syndrome and Mr prasanna kumar shirol shared his experience in India and ORDI initiatives. On this occasion Dr Jagadish Chinnappa, Dr […]

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Rare, but deadly – Bangalore Mirror

Rare, but deadly – Bangalore Mirror

12-07-2015

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Bangalore Miror: Mysterious orphan diseases kill 13k infants

Bangalore Miror: Mysterious orphan diseases kill 13k infants

05-03-2015

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Rare diseases: It's all about the fighting sprint, says survivor

Rare diseases: It’s all about the fighting sprint, says survivor

05-03-2015

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ವಿಜಯವಾಣಿ

ವಿಜಯವಾಣಿ

03-03-2015

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ಸುವರ್ಣ ಟೈಮ್ಸ್ ಆಫ್ ಕರ್ನಾಟಕ

ಸುವರ್ಣ ಟೈಮ್ಸ್ ಆಫ್ ಕರ್ನಾಟಕ

03-03-2015

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ಸಂಯುಕ್ತ ಕರ್ನಾಟಕ

ಸಂಯುಕ್ತ ಕರ್ನಾಟಕ

03-03-2015

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Eeandu

Eeandu

03-03-2015

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Andhra Jyothi

Andhra Jyothi

03-03-2015

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Bangalore Mirror

Bangalore Mirror

02-03-2015

With a sizeable number of the 13,000-plus infant deaths per year in Karnataka being attributed to rare diseases, patient-support groups are demanding the implementation of the proposed Orphan Drugs Act on the lines of the US model. The Organisation for Rare Diseases India (ORDI), a non-profit organisation, has been advocating the need for the act […]

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