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ORDI News

Media coverage of ORDI Conference in Regional Publications

Media coverage of ORDI Conference in Regional Publications

22-02-2016

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Meeting people with rare diseases

Meeting people with rare diseases

22-02-2016

Over two decades ago, Ravi and Nirmala from Bengaluru gave birth to their second child, a daughter who they named Dhanya. While they were ecstatic to welcome a new member in their lives, what bothered them was Dhanya’s incessant wails which only grew with each passing day. On the fifty-eighth day after her birth, doctors […]

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NGO to organise a race to raise funds for rare disease patients

NGO to organise a race to raise funds for rare disease patients

22-02-2016

BENGALURU: The Organization for Rare Diseases India (ORDI) would organise Race for 7, a unique first of its kind event to commemorate Rare Disease Day and draw attention to the needs of rare disease patients in India. The 7km run to be flagged off on February 28 at St. Joseph’s Indian High School will target […]

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Run to create awareness about Rare Diseases

Run to create awareness about Rare Diseases

22-02-2016

To draw attention to the needs of patients with rare diseases in India, the Organisation for Rare Diseases India (ORDI) will organise ‘Race for 7’, a 7-km run on February 28 that is observed as Rare Disease Day. The run that will be flagged off at St. Joseph’s Indian High School in the city will […]

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Lack of experts and drugs turn rare ailments fatal

Lack of experts and drugs turn rare ailments fatal

20-02-2016

Four-year-old Kusuma of Subramanyapura is confined to the wheelchair, her body reduced to nothing more than an eggshell. When she was one, she developed Fibro Ossificans Progressiva (FOP), a genetic fault wherein her muscles were replaced by bones, rendering her immobile and helpless. Similarly, Dhanya Ravi, 25, of Jeevan Bima Nagar is completely dependent on […]

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Kid fighting progeria aims to lessen sufferings of many like him

Kid fighting progeria aims to lessen sufferings of many like him

13-01-2016

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NGO of the Month - Organization for Rare Diseases India (ORDI)

NGO of the Month – Organization for Rare Diseases India (ORDI)

06-12-2015

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Children's Day Celebration

Children’s Day Celebration

01-12-2015

Children’s Day (Bal Divas) is celebrated on 14 November each year to mark the birthday of Jawaharlal Nehru the first Prime Minister of India who loved the company of children. This day intends to increase awareness about children’s’ right to education, health and care. This year, for the first time in India, children’s day was […]

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ದೈಹಿಕ, ಬೌದ್ಧಿಕ ನ್ಯೂನತೆ ಮಕ್ಕಳ ಎರಡನೇ ಹಂತದ ತಪಾಸಣೆ ಶಿಬಿರ

ದೈಹಿಕ, ಬೌದ್ಧಿಕ ನ್ಯೂನತೆ ಮಕ್ಕಳ ಎರಡನೇ ಹಂತದ ತಪಾಸಣೆ ಶಿಬಿರ

11-11-2015

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ಮಿಡಿದ ಹೃದಯಗಳು – ವಿರಳ ಕಾಯಿಲೆ ಪೀಡಿತ ಮಕ್ಕಳಿಗೆ ವೈದ್ಯರ ನೆರವು

ಮಿಡಿದ ಹೃದಯಗಳು – ವಿರಳ ಕಾಯಿಲೆ ಪೀಡಿತ ಮಕ್ಕಳಿಗೆ ವೈದ್ಯರ ನೆರವು

27-08-2015

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