Helpline : +91 8892 555 000
Email : contactus@ordindia.org

ORDI News

RAISING AWARENESS FOR RARE DISEASES: RACE FOR 7 - A 7000 METER WALK FOR 7000 RARE DISEASES

RAISING AWARENESS FOR RARE DISEASES: RACE FOR 7 – A 7000 METER WALK FOR 7000 RARE DISEASES

16-02-2018

Bengaluru, February 15, 2018: The Organization for Rare Diseases India (ORDI), a non-profit organization with a mission to highlight and address the needs of the rare disease community in India, today announced the 2018 edition of Race for 7. Race for 7 is a 7000 meter walk/run to raise awareness for the 7000 documented rare diseases. What started as an awareness walk […]

Read More

Raising Awareness for Rare Diseases: Race for 7

Raising Awareness for Rare Diseases: Race for 7

16-02-2018

Bengaluru, February 15, 2018: The Organization for Rare Diseases India (ORDI), a non-profit organization with a mission to highlight and address the needs of the rare disease community in India, today announced the 2018 edition of Race for 7. Race for 7 is a 7000 meter walk/run to raise awareness for the 7000 documented rare […]

Read More

Raising Awareness for Rare Diseases: Race for 7

Raising Awareness for Rare Diseases: Race for 7

16-02-2018

Bengaluru, February 15, 2018: The Organization for Rare Diseases India (ORDI), a non-profit organization with a mission to highlight and address the needs of the rare disease community in India, today announced the 2018 edition of Race for 7. Race for 7 is a 7000-meter walk/run to raise awareness for the 7000 documented rare diseases. […]

Read More

Organization for Rare Diseases India announces new edition of Race for 7 in Mumbai

Organization for Rare Diseases India announces new edition of Race for 7 in Mumbai

16-02-2018

Mumbai: The Organization for Rare Diseases India (ORDI), a non-profit organization with a mission to highlight and address the needs of the rare disease community in India, on Thursday announced the 2018 edition of Race for 7. This marks the first time that Race for 7 will be conducted in Mumbai. Race for 7 is […]

Read More

More funds sought for rare diseases patients

More funds sought for rare diseases patients

17-12-2017

Bengaluru: The Organisation for Rare Diseases India (ORDI) organised a round table here on Friday to attract the attention of the state government on the plight of patients awaiting treatment. “The state had released Rs 4 crore last year for the treatment of patients suffering from rare diseases and they have benefitted from it. We are […]

Read More

Rare disease policy needs to be implemented immediately: Prasanna Shirol, Co- Founder & Executive Director, ORDI

Rare disease policy needs to be implemented immediately: Prasanna Shirol, Co- Founder & Executive Director, ORDI

21-07-2017

In an interview with ETHealthworld, Prasanna Shirol, Co- Founder and Executive Director, Organization for Rare Disease India, Bengaluru, talks about the bottlenecks that still exist even after the formation of rare disease policy. Edited excerpts: Why does India need a rare disease policy? There are around 7000 rare diseases in the world but in India […]

Read More

Patients with rare, genetic disorders appeal for support

Patients with rare, genetic disorders appeal for support

04-03-2017

Lysosomal Storage Disorders (LSDs) are a group of over 50 rare, life-threatening, chronically debilitating diseases that occur due to the deficiency of specific enzymes in the body. With an aim of spreading awareness on rare, genetic disorders known as Lysosomal Storage Disorders and their impact on individual lives, Lysosomal Storage Disorders Support Society, India (LSDSS), […]

Read More

Rare disease educational brochure

Rare disease educational brochure

01-03-2017

Click here to view the Rare disease educational brochure.

Read More

Race For 7 - Rare Disease - Andhra Jyothy - Karnataka

Race For 7 – Rare Disease – Andhra Jyothy – Karnataka

28-02-2017

Read More

Run For A Cause

Run For A Cause

28-02-2017

Read More

Highslide for Wordpress Plugin