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ORDI News

Patients with rare, genetic disorders appeal for support

Patients with rare, genetic disorders appeal for support

04-03-2017

Lysosomal Storage Disorders (LSDs) are a group of over 50 rare, life-threatening, chronically debilitating diseases that occur due to the deficiency of specific enzymes in the body. With an aim of spreading awareness on rare, genetic disorders known as Lysosomal Storage Disorders and their impact on individual lives, Lysosomal Storage Disorders Support Society, India (LSDSS), […]

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Rare disease educational brochure

Rare disease educational brochure

01-03-2017

Click here to view the Rare disease educational brochure.

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Race For 7 - Rare Disease - Andhra Jyothy - Karnataka

Race For 7 – Rare Disease – Andhra Jyothy – Karnataka

28-02-2017

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Run For A Cause

Run For A Cause

28-02-2017

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Coverage Summary for ORDI press Conference

Coverage Summary for ORDI press Conference

17-02-2017

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Rare Disease Day: Race for 7 to be held on Feb 26

Rare Disease Day: Race for 7 to be held on Feb 26

17-02-2017

Bengaluru: The Organization for Rare Diseases India (ORDI), a non-profit organization committed to addressing the challenges of the rare disease community in the country, on Thursday announced the launch of 2017 Race for 7. Launched in 2016, Race for 7 is a 7000-metre run/walk to raise awareness for the 7000 documented rare diseases and the intent is […]

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Rare Genomics Institute and ORDI are recipients of Sanofi Genzyme’s PAL Award 2016 to Develop Rare Disease Online Learning Modules

Rare Genomics Institute and ORDI are recipients of Sanofi Genzyme’s PAL Award 2016 to Develop Rare Disease Online Learning Modules

31-01-2017

Los Angeles, CA and Herndon, VA January 31, 2017.  Rare Genomics Institute (RG) and the Organization for Rare Diseases India (ORDI) announced today that they are one of the recipients of Sanofi Genzyme’s 6th annual Patient Advocacy Leadership (PAL) Awards for 2016. RG and ORDI have won financial support for the development and dissemination of […]

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ORDIndia announces research collaboration with George Mason University, USA

ORDIndia announces research collaboration with George Mason University, USA

29-10-2016

ORDIndia announces research collaboration with George Mason University, USA with the newly established center for the study of chronic metabolic and rare diseases (CSCMRD). ORDI co-founder, Dr. Harsha Rajasimha to serve as Co-Director of the center along with Dr. Ancha Baranova, Associate Professor, George Mason University. The center webpages can be accessed at: http://cscmd.cos.gmu.edu/index.html   Rare […]

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Precision Medicine Can Offer Hope to Rare Disease Patients

Precision Medicine Can Offer Hope to Rare Disease Patients

12-09-2016

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Why People With Rare Diseases Are Writing to PM Modi

Why People With Rare Diseases Are Writing to PM Modi

03-07-2016

He will turn two this October, but unlike other children his age Baby Haadi cannot sit up, make noises or eat. The little boy’s growth is severely delayed as he suffers from Maple Syrup Urine Disease (MSUD) – a genetic disorder which affects one in 1,85,000 newborns in the world. Because of his condition Baby […]

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