Bring People Living with a Rare Disease out of the Shadows and into the Spotlight:
Samay News Coverage (Kannada) Kasturi News Coverage (Kannada) Public TV Coverage (Kannada)
First annual Patients Advocacy Groups (PAGs) Meeting organized at MS Ramaiah Hospital, Bangalore on 31st Aug, 2014. More than 20 PAGs from all over India participated in the event in-person or remotely. A plan of action has been prepared to advocate for the common good of patients with rare diseases in India.
Raising public awareness about rare diseases and genetics is part of the core mission of ORDI. A marathon event was organized as part of the annual celebrity Mumbai Marathon where over 50 athletes ran for the ORDI cause.
ORDI founder was a panelist at the World Orphan Drugs Asia Conference in Singapore, June 2014
ORDI in partnership with the PID society observed world immunology day at a one-day symposium on Primary Immuno Deficiencies with guest lectures by experts including one from USA.
ORDI was launched at a formal ceremony at the constitution club of India, New Delhi and was inaugurated by Dr. K Vijayraghavan, secretary of the department of Biotechnology, India and Dr. IC Verma, a thought leader in Medical Genetics in India, on feb 18, 2014. Key opinion leaders and patient advocacy groups participated on the […]
Kochi, Kerala, India.