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Gallery

Official Rare Disease Day 2015 Video

Official Rare Disease Day 2015 Video

25-02-2015

Bring People Living with a Rare Disease out of the Shadows and into the Spotlight:

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LSDSS Video

LSDSS Video

28-01-2015

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About Pompe - Program in Sanjeevini - Uday TV

About Pompe – Program in Sanjeevini – Uday TV

28-01-2015

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Prasanna Shirol - ORDI founder member leading the Peace protest in Bangalore for LSD Patients

Prasanna Shirol – ORDI founder member leading the Peace protest in Bangalore for LSD Patients

28-01-2015

Samay News Coverage (Kannada) Kasturi News Coverage (Kannada) Public TV Coverage (Kannada)

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10 Incredibly Rare Diseases

10 Incredibly Rare Diseases

11-01-2015

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First annual Patients Advocacy Groups (PAGs) Meeting

First annual Patients Advocacy Groups (PAGs) Meeting

31-08-2014

First annual Patients Advocacy Groups (PAGs) Meeting organized at MS Ramaiah Hospital, Bangalore on 31st Aug, 2014. More than 20 PAGs from all over India participated in the event in-person or remotely. A plan of action has been prepared to advocate for the common good of patients with rare diseases in India.

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Mumbai Marathon

Mumbai Marathon

19-08-2014

Raising public awareness about rare diseases and genetics is part of the core mission of ORDI. A marathon event was organized as part of the annual celebrity Mumbai Marathon where over 50 athletes ran for the ORDI cause.

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World Orphan Drugs Asia Conference - 2014

World Orphan Drugs Asia Conference – 2014

11-06-2014

ORDI founder was a panelist at the World Orphan Drugs Asia Conference in Singapore, June 2014

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World Immunology Day

World Immunology Day

29-04-2014

ORDI in partnership with the PID society observed world immunology day at a one-day symposium on Primary Immuno Deficiencies with guest lectures by experts including one from USA.

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ORDI Launch Event

ORDI Launch Event

18-02-2014

ORDI was launched at a formal ceremony at the constitution club of India, New Delhi and was inaugurated by Dr. K Vijayraghavan, secretary of the department of Biotechnology, India and Dr. IC Verma, a thought leader in Medical Genetics in India, on feb 18, 2014. Key opinion leaders and patient advocacy groups participated on the […]

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