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Duchenne Muscular Dystrophy Awareness Day

Duchenne Muscular Dystrophy Awareness Day

20-10-2015

Duchenne Muscular Dystrophy Awareness Day, on 7th September 2015. On account of which on Sunday 6th September 2015 there was a celebration organized by DART(Dystrophy Annihilation Research Trust) at Bangalore. Saliya Banu behalf of ORDI attended the event & witnessed the generous donations made by donors in the form of wheel chair to the needy […]

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Press meet - Rare Diseases Initiatives In Karnataka - VGBT & ORDI

Press meet – Rare Diseases Initiatives In Karnataka – VGBT & ORDI

03-03-2015

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The Indomitable Human Spirit

The Indomitable Human Spirit

02-03-2015

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Genomics of Rare Genetic Diseases 2015

Genomics of Rare Genetic Diseases 2015

28-02-2015

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Official Rare Disease Day 2015 Video

Official Rare Disease Day 2015 Video

25-02-2015

Bring People Living with a Rare Disease out of the Shadows and into the Spotlight:

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LSDSS Video

LSDSS Video

28-01-2015

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About Pompe - Program in Sanjeevini - Uday TV

About Pompe – Program in Sanjeevini – Uday TV

28-01-2015

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Prasanna Shirol - ORDI founder member leading the Peace protest in Bangalore for LSD Patients

Prasanna Shirol – ORDI founder member leading the Peace protest in Bangalore for LSD Patients

28-01-2015

Samay News Coverage (Kannada) Kasturi News Coverage (Kannada) Public TV Coverage (Kannada)

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10 Incredibly Rare Diseases

10 Incredibly Rare Diseases

11-01-2015

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First annual Patients Advocacy Groups (PAGs) Meeting

First annual Patients Advocacy Groups (PAGs) Meeting

31-08-2014

First annual Patients Advocacy Groups (PAGs) Meeting organized at MS Ramaiah Hospital, Bangalore on 31st Aug, 2014. More than 20 PAGs from all over India participated in the event in-person or remotely. A plan of action has been prepared to advocate for the common good of patients with rare diseases in India.

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