Duchenne Muscular Dystrophy Awareness Day, on 7th September 2015. On account of which on Sunday 6th September 2015 there was a celebration organized by DART(Dystrophy Annihilation Research Trust) at Bangalore. Saliya Banu behalf of ORDI attended the event & witnessed the generous donations made by donors in the form of wheel chair to the needy […]
Bring People Living with a Rare Disease out of the Shadows and into the Spotlight:
Samay News Coverage (Kannada) Kasturi News Coverage (Kannada) Public TV Coverage (Kannada)
First annual Patients Advocacy Groups (PAGs) Meeting organized at MS Ramaiah Hospital, Bangalore on 31st Aug, 2014. More than 20 PAGs from all over India participated in the event in-person or remotely. A plan of action has been prepared to advocate for the common good of patients with rare diseases in India.