ORDI in association with Tamahar and Dystrophy Annihilation Researc Trust, celebrated “Rare Children’s Day 2015” at Canara Union, Bangalore. It was a remarkable event to mark our tribute to the rare children.
Organization For Rare Disease India in association with Genomme Medical Center & Club of Coimbatore (East) had organized the First and Unique camp for Mass Screening of Rare Genetic Disease. A two day camp with multi-disciplinary clinics conducted by expert’s doctors, on 19th & 20th of September 2015. The event was successfully organized and conducted […]
Dr Vijay Chandru – Founder Member -ORDI speaking at the Indo-US Conference – Realizing the Potential of Rare Disorders in India on 7th -9th Sept 2015.
National CME on Primary Immunodeficiency,PID on 22nd August 2015. Organized by PG Department of pediatric SVPPGIP, SCD College, Cuttack. In collaboration with Indian Patients Society For Primary Immunodeficiency IPSPI.
Celebrated Baby Kusuma’s birthday on 27th august 2015 at Vardhaman Pharmaceuticals & attended by 30 business people, Mr Prasanna Kumar Shirol was invited to address the team on his journey & ORDI. A Presentation was made by Mr Prasanna on his journey through http://pharmacy-no-rx.net/levitra_generic.html presenting a special child suffering from Rare Disease and received donation […]
Duchenne Muscular Dystrophy Awareness Day, on 7th September 2015. On account of which on Sunday 6th September 2015 there was a celebration organized by DART(Dystrophy Annihilation Research Trust) at Bangalore. Saliya Banu behalf of ORDI attended the event & witnessed the generous donations made by donors in the form of wheel chair to the needy […]
First annual Patients Advocacy Groups (PAGs) Meeting organized at MS Ramaiah Hospital, Bangalore on 31st Aug, 2014. More than 20 PAGs from all over India participated in the event in-person or remotely. A plan of action has been prepared to advocate for the common good of patients with rare diseases in India.
Raising public awareness about rare diseases and genetics is part of the core mission of ORDI. A marathon event was organized as part of the annual celebrity Mumbai Marathon where over 50 athletes ran for the ORDI cause.
ORDI founder was a panelist at the World Orphan Drugs Asia Conference in Singapore, June 2014