Follow the link for Racefor7 – 2017 Bangalore photos
Racefor7 was simultaneously organized in USA and India on Feb 26. The rare disease awareness message was taken to the US Capitol, Whitehouse and Lincoln Memorial. The 7km run was organized at the Washington Monument National Park.
ORDI and research collaborator George Mason University (GMU) had an exhibit table at the US National Institutes of Health (NIH) Rare Disease Day Event on Feb 27, 2017. Five students from GMU pursuing research in rare diseases with ORDI co-founder, Dr. Harsha Rajasimha participated at the exhibit gathering feedback from the community of researchers.
Dr. Harsha Rajasimha, Co-Founder, ORDI presented on “Challenges and Opportunities for rare diseases in India, a progress report and lessons from rest of the world.” And “Uniting >70Million patients with rare diseases in India and connecting with global initiatives.”
ORDI Co-Founder Dr. Harsha Rajasimha organized the first official ORDI USA event at Inchin Bamboo Garden, Herndon, VA. About 12 friends of ORDI participated and donated for the cause on the occasion.
ORDI – Co founder Mr Prasanna Kumar B Shirol participated in Bangalore INDIA BIO Conference, as a speaker in discussion on Rare Disease and Orphan drug held between 9th to 11th February, 2016 at The Lalit Ashok, Bangalore.
ORDI in association with Tamahar and Dystrophy Annihilation Researc Trust, celebrated “Rare Children’s Day 2015” at Canara Union, Bangalore. It was a remarkable event to mark our tribute to the rare children.
Organization For Rare Disease India in association with Genomme Medical Center & Club of Coimbatore (East) had organized the First and Unique camp for Mass Screening of Rare Genetic Disease. A two day camp with multi-disciplinary clinics conducted by expert’s doctors, on 19th & 20th of September 2015. The event was successfully organized and conducted […]
Dr Vijay Chandru – Founder Member -ORDI speaking at the Indo-US Conference – Realizing the Potential of Rare Disorders in India on 7th -9th Sept 2015.