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Kingshuk Ganguly, RD Volunteer – Mumbai

kingshukA Kingshuk Ganguly is a consultant specializing in facilitation, assessment and coaching.

In his corporate life of two decades, Kingshuk has played various roles beginning with Plant Maintenance, Sales, Relationship Management, Collections, Underwriting and Leadership Development across industries (Steel, Heavy Engineering, Financial Services, Outsourcing and Life Insurance).

In his previous role, Kingshuk was VP & Head (Organisation Development) at Bharti AXA Life Insurance Company Limited, based out of Mumbai. Their team was responsible for performance management, learning, talent management, internal communication and culture in the organization of 6000 employees across 180 locations.

Some of his key initiatives at Bharti AXA Life Insurance Company have been around performance and talent management where the building blocks were put in place, beginning with observation of talent, knowing them intimately and then identifying roles suitable for them. Similarly, the criteria for identifying talent was socialized with the leadership team, so that the decision making on talent mobility was objective, long term and predictable. Most importantly, it allowed the CXOs to view, comment and align the talent from an `Organization’ perspective, as against a `Department’ perspective.

Reeti Mahobe, RD Volunteer – Glycogen Storage Disorders (GSDs)

reeti Reeti Mahobe is a graduate from Lady Shri Ram college and is currently pursuing a Master’s in Public Administration. She is working with Chaupal as a programme coordinator at Raipur. She has a keen interest in the development sector and policy analysis.

She herself has GSD type IIIa. She hopes to create a pan-India support group for the affected individuals and their families and also thereby build a forum where the concerns of people are addressed and ensure an enabling environment is created for those impacted, to lead a happy life.

Vikas Bhatia, RD Volunteer – New Born Screening

vikas-bhatia1Co founder of MERD India,

Got involved in promoting awareness for Inborn Errors of Metabolism & Rare Genetic Disorders after his third son’s death. All the three were born with rare metabolic disease Pyruvate Carboxylase Deficiency . After he decided to help parents who are facing the similar kind of problem Now his life objective is to provide moral and informative support to the parents of children suffering from IEM and campaign new born screening g in India.

He is a Owner of Hand loom Emporium ( Saree Business) at Jaipur Rajasthan.


Meera, RD Volunteer – Eye Disorders

meera Meera Lakshmanan is an independent researcher on accessible technology and a volunteer

working with visually impaired people.

She has a banking background with a master’s degree in commerce.





Ramgopal Vallath, RD Volunteer – CIPD (Chronic Inflammatory Demyelinating Polyneuropathy)

ramgopalvalanthRamgopalVallath or RamG as he is known is the head of publishing at AzimPremji Foundation. He also works part time in an exciting start up– Zentron Labs, in the machine vision space.

RamG believes he is the most positive person he has ever met in his life.

After completing his B Tech from IIT Chennai and his PGDBM from XLRI, RamG dived into his corporate career with gusto. He had a very successful stint and became one of the youngest COOs in the Telecom Industry at 35. He went on to become Director Operations for HP India.

Unfortunately he was afflicted with an autoimmune disorder at the age of 33. This progressively weakened his nerves and muscles till he found even day to day tasks difficult to perform. Not one to give up, he searched out a potential cure for himself – a clinical trial in Chicago.

While undergoing the treatment, infused with chemo and a mix of rabbit and rat extracts, an idea for writing a series of funny wacky books came to him. He wrote his first book using a voice to text software, since he was unable to use his hands to type.

Today, RamG has recovered most of his strength; he is a successful published author and a motivational speaker. He is mentoring start-ups, works part time in a start-up and is a full time learner of sciences. His aim in life is to become the most prolific science author in the world and also to touch as many lives positively as he can.

Parul Jauhari – Delhi

newParul Jauhari is a Post Graduate in Biotechnology who has also worked in the social sector. As a teacher in Teach For India, she has been actively involved as a counsellor and change-maker for families from the economically weaker section. Blessed with a penchant for gathering knowledge about anything and everything in the universe, her interests range from psychology to art to adventure sports.
Her love for writing brought her to ORDI where she seeks to share the stories of people with rare diseases, including her own, with the world. Her objective is to garner support for them by dissemination of information and generation of awareness towards their cause.

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