ORDI was founded to address the many challenges in the management of rare disease in India. A lack of awareness about rare disease even among doctors means that a diagnosis can often take many years. The cost of diagnosis and treatment can also be prohibitively expensive. In the absence of a national government policy surrounding rare disease, there is no push for the development of orphan drugs, the very medicines that can provide relief for patients with a rare disease. Read more..
Department of Human Development and Research Centre,
Smt V.H.D Central Institute Of Home Science (Autonomous),
Dr. D Premachandra Sagar Auditorium for Performing Arts,
Dayanand Sagar Institutions Campus,
Bangalore - 560 078